ADPKD Patient Perspective

The Burdens of PKD

The Burdens of PKD:

In this video, Ann Bartels talks about the financial, emotional, and physical difficulties of having PKD, and her hopes for finding a cure with the help of the PKD Foundation.

The Life-Changing Effects of PKD

The Life-Changing Effects of PKD:

In this video, Nicole Harr, director of patient and community engagement at the PKD Foundation, talks about her experiences as a PKD patient and the effects it has on her family.

The Physical Symptoms of PKD

The Physical Symptoms of PKD:

In this video, Peggy Robinson, a volunteer fundraising coordinator at the PKD foundation, describes in detail the physical symptoms she lives with every day, as well as her hopes for improvement in physician understanding of PKD.

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Health care professionals should use their independent judgment when reviewing the ADPKDsim's educational resources. Users seeking medical advice should consult with a health care professional.