Resources
ADPKD Patient Perspective
The Burdens of PKD:
In this video, Ann Bartels talks about the financial, emotional, and physical difficulties of having PKD, and her hopes for finding a cure with the help of the PKD Foundation.
The Life-Changing Effects of PKD:
In this video, Nicole Harr, director of patient and community engagement at the PKD Foundation, talks about her experiences as a PKD patient and the effects it has on her family.
The Physical Symptoms of PKD:
In this video, Peggy Robinson, a volunteer fundraising coordinator at the PKD foundation, describes in detail the physical symptoms she lives with every day, as well as her hopes for improvement in physician understanding of PKD.
The information provided on the ADPKDsim website is intended for your educational benefit only. It is not intended as, nor is it a substitute for medical care or advice or professional diagnosis.
Health care professionals should use their independent judgment when reviewing the ADPKDsim's educational resources. Users seeking medical advice should consult with a health care professional.